About the MDS Alliance

The MDS Alliance is a patient-centered organization dedicated to improving the lives of individuals affected by Myelodysplastic Syndromes (MDS) and related bone marrow disorders.

Our Mission

To provide comprehensive support, education, and advocacy for MDS patients, caregivers, and healthcare providers through:

• Patient education and resources
• Support group connections
• Advocacy for better treatments and care
• Research funding and awareness
• Healthcare provider education

Our Vision

A world where every person affected by MDS has access to the best possible care, support, and quality of life.

What We Do

Patient Support

We connect patients and families with resources, support groups, and educational materials to help them navigate their MDS journey.

Education

We provide comprehensive information about MDS, treatment options, and coping strategies for patients and caregivers.

Advocacy

We work to improve access to care, advance research, and ensure that MDS patients' voices are heard in healthcare policy decisions.

Research Support

We fund research initiatives and help connect patients with clinical trials that may benefit their specific situation.

Our Team

Our team includes MDS patients, caregivers, healthcare professionals, and advocates who are passionate about improving MDS care and support.

Get Involved

Join our community of patients, caregivers, and supporters. Whether you want to share your story, volunteer, or support our mission, there are many ways to get involved with the MDS Alliance.